Working Documents
The products of the ItalianDIAfN project are the following
GENETIC COUNSELLING DOCUMENTS
Genetic Counselling Protocol
Manual with procedures and methodologies for genetic counselling of familial forms of Alzheimer’s Disease and Frontotemporal lobar degeneration.
Fact Sheet and Informed Consent form for AD and FTLD patients
Fact sheet and informed consent for patients undergoing the genetic counselling protocol
Fact Sheet and Informed Consent form for AD and FTLD at-risk relatives
Fact sheet and informed consent for at-risk relatives undergoing the genetic counselling protocol
Genetic Flowchart
Step-by-step algorithm to assist in the search of genetic mutations for Alzheimer’s Disease.and Frontotemporal lobar degeneration.
RESEARCH DOCUMENTS
Research Protocol
Assessment Manual for families with a genetic mutation: instruction for the collection of clinical, neuropsychological, neuroimaging, neurophysiological and biological data.
Fact Sheet and Informed Consent form for AD subjects
Fact sheet and informed consent for subjects belonging to families with a known mutation for Alzheimer’s Disease undergoing the research protocol.
Fact Sheet for AD subjects
Informed Consent form for AD subjects
Fact Sheet and Informed Consent form for FTLD subjects
Fact sheet and informed consent for subjects belonging to families with a known mutation for Frontotemporal lobar degeneration undergoing the research protocol.
Fact Sheet for FTLD subjects
Informed Consent form for FTLD subjects
ItalianDIAfN REGISTRY
National Registry
Criteria for inclusion in the ItalianDIAfN Registry and list of data collected and stored anonymously on the dedicated digital platform with reserved access.